HeartKids can assist with information about your hospital stay, for example information on available accommodation, meals, and transport and parking. In some cases we can assist families financially in these areas. We can also assist with information on the availability of certain hospital services such as social workers, occupational therapists, and speech pathologists.
Most valuable to our families during the crucial time of surgery are our Family Support coordinators. These coordinators are ‘heart mums’ and understand more than most what families are experiencing during the often tension filled hospital stays.
As well as offering support to families, HeartKids aims to increase awareness in the general community and corporate sector about the high incidence of congenital heart defects and its ongoing consequences. Please contact HeartKids in your state if you are visiting one of the children’s hospitals, or if you would like some support.
We are also interested in identifying where the gaps are in services for HeartKids, their parents and families and how these gaps can best be filled-hence we commissioned a study into this issue. The results of the study have been published as a White Paper. Click here to read more
Here are some quick links to useful information that may help.