Useful Links

Heart Disease

Heart Defects Simplified
www.heartdefectssimplified.com

Congenital Heart Surgeon’s Society Data Center
http://www.chssdc.org/

Heart Support
http://www.heartnet.org.au/

Genetic Syndromes

Australian Genetics Support Australasia (AGSA)
http://www.agsa-geneticsupport.org.au/

Centre for Genetics Education of NSW
http://www.genetics.edu.au/

Marfan Syndrom
http://www.marfan.org/marfan/

Marfan Syndrom NSW
http://www.marfan.net.au/

Velo-cardio-facial syndrome (VCFS)
http://www.vcfsfa.org.au/pages/home.php

Bereavement

Sudden Arrhythmic Death Syndrome (SADS)
http://www.sads.org.au/

Sids and Kids is an organisation that offers grief/bereavement counselling to families who have experienced the sudden and unexpected death of a child up to six years of age; there are groups also in the Hunter and other states of Australia.
http://www.sidsandkids.org/

Compassionate Friends Australia offers friendship and support to parents and their families following the death of a child. They provide connections to other individuals and families who have had a similar experience in the death of a child. These services are offered across Australia with offices based in each state.
http://www.thecompassionatefriends.org.au

M.I.S.S. Foundation is an international resource and is a community of compassion and hope for grieving parents. It provides an online forum and links to articles offering further support and information.
http://www.misschildren.org

Other contacts are:
Kids Help Line: 1800 55 1800
Lifeline: 131 114
Bereavement C.A.R.E. Centre: 1300 654 556