Heart Defects Simplified
Congenital Heart Surgeon’s Society Data Center
Australian Genetics Support Australasia (AGSA)
Centre for Genetics Education of NSW
Marfan Syndrom NSW
Velo-cardio-facial syndrome (VCFS)
Sudden Arrhythmic Death Syndrome (SADS)
Sids and Kids is an organisation that offers grief/bereavement counselling to families who have experienced the sudden and unexpected death of a child up to six years of age; there are groups also in the Hunter and other states of Australia.
Compassionate Friends Australia offers friendship and support to parents and their families following the death of a child. They provide connections to other individuals and families who have had a similar experience in the death of a child. These services are offered across Australia with offices based in each state.
M.I.S.S. Foundation is an international resource and is a community of compassion and hope for grieving parents. It provides an online forum and links to articles offering further support and information.