The provision of information is an important part of the support that HeartKids provides to families. We believe that up-to-date, relevant information is a vital piece of our community’s armoury in the fight against childhood heart disease.

HeartKids provides extensive information to educate parents, caregivers, teens, adults and families affected by childhood heart disease.  This educational information is provided by our Family Support Staff in hospitals as well as in the community, at events and seminars (either face-to-face or online), via our very interactive social media communities and by direct contact with your local HeartKids office.

Information, advice and support is always just a phone call away by dialing our National Information Line on 1800 432 785.


Information and resources specifically for heart kids aged 13 to 22 years can be found at Heart teens and young adults should also join MyHeart – our HeartKids Teen Community on Facebook – to keep informed, supported and connected with others. A key focus of HeartKids is to educate and support this group as they transition from paediatric to adult care.

Click below to hear some insightful presentations from expert speakers on the treatment and impacts of childhood heart disease. These were filmed at recent HeartKids Education Days for parents, as well as a specific Education Day for adults with childhood heart disease (ACHD).

pippa-sowmanA holistic approach to supporting young people with chronic illness

Speaker: Pippa Sowman


michelle-roseThe patient journey once diagnosed with Pulmonary Hypertension

Speaker: Michelle Rose


salvatore-pepeDesigning new strategies for treating paediatric heart disease

Speaker: Salvatore Pepe


brigid-jordanFather infant relationships following cardiac surgery

Speaker: Brigid Jordan


david-tanousAdult Congenital Heart Disease and Pregnancy

Speaker: David Tanous


cordinaExercise in Adults with CHD: What is safe, what is not and what is best for you?

Speaker: Rachael Cordina


bec-petersThe journey into adult health services

Speaker: Rebecca Peters


As part of our commitment to education, HeartKids is a sponsor of the Victor Chang Cardiac Research Institute’s 17th International Symposium – Heart Development and Regenerative Medicine – to be held in Sydney on 6-8 November 2016.

Join the HeartKids’ community on Facebook to ensure you are kept up-to-date and educated on the latest information for all people affected by childhood heart disease.


Heart Kids | Australia