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Transition

There are many differences between the services provided at a children’s hospital (paediatric services) and adult services. A key difference is that child health services are family focused with parents/carers taking responsibility for care, whereas adult services require young adults to operate independently and be actively engaged in the management of their care. This requires a unique set of skills, information and support.

Young people with childhood heart disease will transition into the adult healthcare system over a period of time. The actual transfer of care from a paediatric to adult cardiologist occurs at the age of 18 years.

Transitional programs are available to prepare and empower young people to manage their own health and facilitate a smooth transfer from paediatric to adult health services.

The four phases for an effective transition are:


Introductory/Planning Phase
(Approximately 12-15 years old)

Patients are introduced to the concept of transition, starting the information exchange, and assessing their knowledge of their medical condition and how to manage it.

Preparation Phase
(Approximately 15-18 years old)

Patients develop a transition plan and are assigned a transition lead (person who will help to manage the transition process). During this phase, confidentiality, rights and self-advocacy are explored.

Transfer phase
(18-19 years) 

Readiness to transfer is assessed and all relevant information is sent to the new adult care team. The patient has their last visit with their paediatric cardiologist and will meet and start having appointments with their adult cardiologist. 

Evaluation phase
(6-18 months following transfer) 

The patient and their parents and carers have the opportunity to provide feedback about the transition and transfer process and their experience.

 

HeartKids recently received seed funding to develop a Teen Transition program at Adelaide’s Women’s and Children’s Hospital to assist youths (13-18 years) to navigate the childhood heart disease journey into adulthood.

Project Outcomes:

1. A reduction in the number of youths with CHD ‘falling out of the system’ in this vital transition period, and through this, a reduction in mortality rates.
2. Through the provision of easily accessible information, program participants are more resilient and emotionally strong, well informed and understand their choices about living with CHD.
3. Increased levels of self-management of the participants’ chronic disease, delivering opportunities to improve life outcomes and therefore more independent, successful and productive lives.