Advocacy

HeartKids is the national peak congenital / childhood heart disease organisation and the voice of people impacted by the disease.

As a leading consumer health advocate we support patients and their families by advocating on their individual and collective behalf to Australian, State and Territory Governments, health and hospital networks, and other agencies that play a part in your congenital / childhood heart disease journey.

HeartKids is now actively campaigning for:

  • A National Congenital / Childhood Heart Disease Action Plan
  • Increased investment in research by Government and others; and
  • To ensure patients and their families/ carers gain equitable access to government assistance and support

Many of our advocacy priorities are based on extensive ongoing consultation with families, heart kids of all ages, and health professionals.  Much of the evidence used to support our submissions to Government emanates from the 2011 Congenital Heart Disease White Paper commissioned by HeartKids and the Cardiac Society of Australia and New Zealand. Download the White Paper (PDF 466.8KB)

How can we help you?


HeartKids maintains a comprehensive directory of services including how to provide feedback or lodge a complaint if your feel your health care does not meet appropriate standards.

For more details contact the HeartKids Helpline on 1800 432 785.