HeartKids Family Support Team
HeartKids employs over twenty staff located in Children’s Hospitals in Adelaide, Brisbane, Canberra, Darwin, Melbourne, Perth and Sydney. We work in partnership with Hospitals as visiting non government organisations.
HeartKids Regional Support Coordinators also work in a number of regional and rural communities to support people living with congenital/childhood heart disease and their families.
At the heart of our Support Program is the Support Team, a passionate and dedicated group of Social Workers, Nurses and allied health professionals, many of who are heart kid parents themselves. Our team is assisted by a number of trained HeartKids Volunteers also provide assistance to families and act as buddies, mentors and supporters.
Our Support Managers and Coordinators role is to assist and support you with information about your hospital stay, for example information on available accommodation, meals, and transport and parking and link with or introduce your family to hospital services such as Social Workers, Occupational Therapists, and Speech Pathologists.
As well as offering support to people living with congenital / childhood heart disease and their families, HeartKids also acts as a compass to guide you and your family on your journey as and when you need support. Support is available to any person living with or diagnosed with congenital or acquired heart disease regardless of age as HeartKids supports heart kids through life.
HeartKids holds regular morning teas and events in hospital and in the community to connect families, young people and adults. These morning teas and events are a great chance to meet other families and hear first hand about their experiences.
Please contact the HeartKids Helpline on 1800 432 785 and we will connect you with your local Support Coordinator and to be linked with other HeartKids parents volunteers in your community.
Teen Transition Workers
In NSW / ACT and VIC / TAS HeartKids employs specialist part time Teen Transition Workers whose role is to assist young people aged 13 to 25 living with congenital heart disease. These workers are specialists in teen transition and assist young people and young adults and their families in moving from your children’s hospital to adult hospitals and care.
You can make an appointment to meet our Teen Transition Workers by calling 1800 432 785.