Number of Members
50-1000
Main Activities
Online chat/support
Conditions of Participation
Private FB group; Request to join required. For those with Danon Disease, or for those caring for family members or friends with Danon
About
Danon Disease Support Group is dedicated to helping families and loved ones with this disease. Although everyone is different in one way or another, we all face the same challenges with our hearts and overall issues and hope that someone in this group is able to help others understand or give advice on how their heart works, or what their family deals with on a daily basis.
