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Australian Childhood Heart Disease Action Plan  

 

 

Public Consultation Period Open! Have your say!

GET STARTED

Welcome to HeartKids.

Welcome to the HeartKids Website! Use the search function below to find what you're looking for. If you have any questions please contact us on office@heartkids.org.au or call us on 1800 432 785.

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Huxtable clan Newsletter

Word from a Heart Kid Dad:

"Just a random, sincere "Thank you" to HeartKids for everything that you do for everyone... I've been reading through the posts and it seems that I had locked away the memories of our little boys surgery. It all came flooding back and I was overwhelmed with emotion. But along with the memories of feelings of anxiety, fear, despair and uselessness were the feelings of support, love, hope and faith - in large part to this wonderful organisation and the supports they have in place, and also the wonderful network of parents of amazingly-brave little heart kids!! 

We are an unlucky bunch in some ways, but also lucky to know just how extraordinary our little miracles are in getting on with it... (even when Daddy is on the brink of falling apart!)  ðŸ˜‹ 

Much love to all x” Steven  - Heart Kid Dad

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Featured Event

hkids_EduDay.ADULTNational.Web Front Page

Education Days

HeartKids 2018-19 CHD Education Days will focus on two of the most requested topics from our community: Adults living with Congenital Heart Disease and Fathers of Heart Kids and Bereaved Fathers. Workshops are led by experts in their fields and inclu ...

Read more

Latest News

  • HaveYourSay.Website.767x501.200818 RESIZED

    Action Plan Public Consultation Open

    Public Consultation Period Open! Have your say! HeartKids is partnering with the childhood heart disease community to deliver Australia's first National Action Plan for Childhood Heart Disease (the Plan).

  • Family Formal Committee

    HeartKids Family Formal

    This year’s HeartKids Family Formal organised by the Victorian Youth Advisory Committee was held on Saturday 18 August at Bayview on the Park. The Formal provided a way for young people living with a heart condition to integrate their family, friends ...

  • hkids_EduDay.ADULTNational.WebPic.767x501.190718

    Education Days for Adults living with Congenital Heart Disease

    HeartKids is here to help you and your family navigate your congenital heart disease journey offering a comprehensive free information service for people of all ages.

  • Mark-Brooke Photo

    Change of Leadership

    It is with sadness that we announce that Mark Brooke will be leaving us as CEO of HeartKids. We are sure you will join us in thanking Mark for his leadership over the last two years.

  • Teen Camp 2017 - Group Photo

    It's a Wrap

    Thank you to all our wonderful supporters who backed our teen's and young adults with CHD during their Teen Camp. Lots of fun was had by all.

  • HK WEB WA GALA BALL

    HeartKids Gala Ball Launches for 2018

    Over 500 guests attended the HeartKids Gala Ball in Perth on Saturday 19 May. It was a night of celebration with a Motown theme and now it is Sydney's turn 22 Sept

  • HK WEB GIA 2018 LATEST NEWS

    HeartKids funds ground-breaking new research

    HeartKids Grants-in-Aid Program will provide $273,000 to support a range of new Australian research projects into congenital and acquired childhood heart disease in 2018.

  • UNI NSW

    More genetic services needed

    Parents of babies born with heart disease should be offered specialised cardiac genetic counselling to reduce risk, prevent future disease and improve treatment outcomes, according to world-first research led by UNSW, UTS and the Sydney Children’s Ho ...

  • hkids_SuperBossDay.RGB.SML

    Super Boss Day 2018

    Super Boss Day ... is coming Friday 15 June 2018! Super Boss Day challenges you to dress as a superhero for a day to raise funds to support kids with congenital/childhood heart disease. REGISTER to be a Super Boss yourself or you can NOMINATE your ...

  • HK WEBSITE LATEST NEWS ACTION PLAN

    Childhood Heart Disease National Action Plan

    Implementing the first Childhood Heart Disease National Action Plan and pledge from government for a National Childhood Heart Disease Mission.

Donate now!

Make a difference today!

Support kids, teens and adults impacted by congenital or acquired heart disease today by sending a gift now!

(All donations above $2 are tax-deductible!)

GET STARTED

How We Help

  • Dads

    Some resources for dads of children with congenital heart disease or Heart Angels

  • INFORMATION WIDGET

    Information & Support

    HeartKids can assist with information about your hospital stay, for example information on available accommodation, meals, and transport and parking. In some cases we can assist families financially in these areas. We can also assist with information ...

  • HK WEBSITE HOW WE HELP PARENTS

    Parents

    Finding out that your child or unborn baby has a heart condition can be overwhelming. Many cases of congenital heart disease are diagnosed before a baby is born during an ultrasound scan in pregnancy. In some babies heart problems will be detected a ...

  • black n white hand and foot RESIZE

    Heart Angels

    Two Feet & A Heartbeat serves as a tribute and celebration of the four lives lost to congenital heart disease every week in Australia. For over 35 years HeartKids has been working with families who have experienced the loss of a child or young person ...

    Heart Angels
  • HK WEBSITE HOW WE HELP YOUNG PEOPLE

    Young People

    Childhood heart disease is a lifelong journey and can affect your life in every way. We understand it’s a lifelong journey and one you take with your family and friends. HeartKids recognises that children and teens impacted by congenital heart di ...

    Young People
  • ADULT JEANETTE RESIZED

    Adults

    For the first time ever, and due to medical advances, there are now more adults living with congenital heart disease than there are children - meaning, more are surviving than ever before. Although this is fantastic news, we are faced with a new ...

    Adults
  • RESEARCH STOCK

    Research

    HeartKids receives no government funding and we are only able to continue the life-changing work that we do with the generous support from the general public. HeartKids is proud to have committed over $3,000,000 of funding for research projects looki ...

    Adults | Research
  1. Adults
  2. Heart Angels
  3. Research
  4. Young People

The Blog

Elle
12 Sep 2018

Open Heart Surgery - Tips & Tricks from a Pro

Our New Guest Blogger HeartKid Elle shares her tips and tricks for getting ready for surgery, what to expect during your hospital stay and at home.

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Stem cell release blog
31 Jul 2018

Stem Cell research funding for congenital heart disease

Today the Minister for Health, The Hon. Greg Hunt MP, reiterated the Australian Government's support for the Conquering Childhood Heart Disease Research Mission, by providing $750,000 in funding to investigate regeneration of heart muscle using stem ...

Read more
IMG_7108
13 Jul 2018

Teen Camp & Supporting Teens to Prepare for Adulthood Living with CHD

Mark Brooke, HeartKids CEO, reflects on HeartKids Teen Camp and our role in helping young people prepare for managing their own health into their early adult years.

Read more

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Recent Articles

  1. Action Plan Public Consultation Open
  2. HeartKids Family Formal
  3. Education Days for Adults living with Congenital Heart Disease
  4. Latest News
  5. Change of Leadership

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