Every 3 hours a child is born with CoHD

“When your child is sick in hospital the worries are endless and then there’s the utter despair of having our family separated” Mum, Rachael

The HeartKids Podcast

Featuring cardiologists, experts and people from our community sharing their stories. New episodes every fortnight!

UpBeat: An app for heart teens

UpBeat helps teens manage their health care information and get prepared to move to the adult health care system.

Be Hero for HeartKids

Dress up on the Friday 14th of June and show your hero status for HeartKids. Register today to start fundraising!

HeartKids WA Gala Ball 2024

Join us at the stunning Crown Ballroom for an evening of sophistication, gourmet dining and premier entertainment, while generously contributing to HeartKids.

The HeartKids Podcast

Featuring cardiologists, experts and people from our community sharing their stories. New episodes every fortnight!

UpBeat: An app for heart teens

UpBeat helps teens manage their health care information and get prepared to move to the adult health care system.

Search for what you’re looking for here.

What is

Childhood-onset Heart Disease (CoHD)?

Childhood-onset heart disease (CoHD) is the collective term for the spectrum of heart conditions that affect the heart’s ability to work efficiently.

Heart defects and conditions experienced from birth are known as Congenital Heart Diseases (CHD). Acquired Heart Disease refers to conditions that arise later in childhood, commonly as a result of infections or exposures.

Condition Types

What We Do

HeartKids is the only Australian not-for-profit organisation dedicated to supporting and advocating for families impacted by childhood-onset heart disease (CoHD).

Our Support

We bring care and connection to those living with CoHD. As your CoHD companion for life, HeartKids makes holistic care possible with access to tailored information, resources, and support.

Our Impact

HeartKids provides much-needed quality services, support and solutions to more than 80,000 Australian children, teenagers and adults affected by CoHD.

Our Resources

HeartKids provides trusted information and resources about CoHD. Our resource library is a one-stop-shop for all our CoHD resources, including fact sheets, podcasts, videos and more.

How You Can Help

Give to HeartKids

Your heartfelt gift will bring hope and transformation to over 80,000 Australians living with CoHD, and much-needed support to hundreds of families coping with the grief and loss of their child. Discover the ways to give and get involved today.

Community Fundraising

Find your passion and get involved in making a lasting difference in the lives of those impacted by CoHD. Discover our engaging community programs today. 

Get Your Work Involved

Discover how to get your workplace involved in transforming the lives of those living with CoHD today. 

Volunteer With Us

We greatly appreciate the gift of your time as we unite to support those living with CoHD. Explore the many ways you can volunteer with HeartKids 

Latest News and Stories

Media Release: HeartKids announces CEO Transition

1 May 2024: Ms Lesley Jordan has advised the Board of her intention to step down as interim Chief Executive Officer of HeartKids, to take effect from 1 May 2024, as part of a planned transition having successfully stabilised the organisation over the past 16 months. Ms Jordan’s decision is motivated by her belief that […]...

Health Professional Education Platform: New Modules Released

New neurodevelopmental and neurocognitive care modules for healthcare professionals HeartKids are excited to announce the release of new learning modules to support neurodevelopmental and neurocognitive care for patients and families living with CoHD. Our learning modules designed for healthcare professionals include helpful care pathways along with useful Australian specific patient and family supports and resources. […]...

Media Release: Heroes Assemble Across Australia

Heroes Assemble Across Australia to Support Seriously Sick Kids 6 June 2024 Heroes are assembling in a nationwide push to raise awareness and vital funds for childhood-onset heart disease (CoHD), as HeartKids encourages Australians to dress up, donate, and channel their inner superhero on Friday 14th June in the annual fundraising campaign, Hero for HeartKids. […]...

Warning: Aboriginal and Torres Strait Islander people are warned that this website may contain images and voices of deceased people. It may also contain links to sites that may use images of Aboriginal and Torres Strait Islander people.

Acknowledgement of Country

HeartKids acknowledges the Traditional Owners of the land on which we live, work and meet. We acknowledge the continuing connections to land, sea, waters and skies and pay our respects to Elders past and present.

HeartKids treads lightly on Country and works in collaboration and support of Aboriginal and Torres Strait Islander people, families and communities impacted by childhood-onset heart disease (CoHD) and Rheumatic Heart Disease (RHD).

This will close in 0 seconds

We use cookies to improve your experience of using this website. By continuing to use this website you have consented to using cookies placed on your computer. To find out more please refer to our Privacy Policy.

This will close in 0 seconds