What is
Childhood-onset Heart Disease (CoHD)?
Childhood-onset heart disease (CoHD) is the term used to describe the range of heart conditions that impact people from birth or develop during childhood.
Some heart conditions are present from birth and are known as congenital heart disease. Others develop later in childhood and are known as acquired heart disease, often following illness or infection.
Condition Types
Aortic Valve Disease
Atrial Septal Defect
Atrio-ventricular Septal Defect (AVSD)
Cardiomyopathy
Coarctation of the Aorta
Cyanotic Congenital disease
Hypoplastic Right Heart Syndrome (HRHS)
Hypoplastic Left Heart Syndrome (HlHS)
Mitral Valve Disease
Persistent Ductus Arteriosus (PDA)
Pulmonary Atresia
Pulmonary Valve Disease
Single Ventricle Pathology
Tetralogy of Fallot (ToF)
Pulmonary Stenosis
Transposition of the Great Arteries (TGA)
Ventricular Septal Defect (VSD)
What We Do
HeartKids is Australia’s only national organisation dedicated to children, young people and families impacted by childhood-onset heart disease (CoHD), providing information, support, connection and advocacy across every stage of their unique journey.
Our Support
CoHD is a lifelong journey, and so is HeartKids’ support. Our teams, many with lived experience, offer emotional and practical care, tailored to milestones like diagnosis, schooling, and adulthood, ensuring families and individuals receive expert guidance at every stage.
Our Impact
For nearly 50 years, HeartKids has ensured that those impacted by childhood-onset heart disease are informed, connected and supported across every life stage. Grounded in lived experience, clinical expertise and meaningful advocacy, HeartKids helps shape research, policy and standards that will improve health outcomes for generations to come.
Our Resources
HeartKids provides trusted information and resources about CoHD. Our resource library is a one-stop-shop for all our CoHD resources, including fact sheets, podcasts, videos and more.
How You Can Help

Give to HeartKids
Your heartfelt gift will bring hope and transformation to over 250,000 Australians living with CoHD. Discover the ways to give and get involved today.

Community Fundraising
Find your passion and get involved in making a lasting difference in the lives of those impacted by CoHD. Discover our engaging community programs today.Â

Get Your Work Involved
Discover how to get your workplace involved in transforming the lives of those living with CoHD today.Â

Volunteer With Us
We greatly appreciate the gift of your time as we unite to support those living with CoHD. Explore the many ways you can volunteer with HeartKids. Â
Latest News and Stories
ABC North and West SA Two Feet & A Heartbeat Radio Clipping: CEO Sami Glastonbury
Two Feet & A Heartbeat 2026 News Clipping: Originally posted 14/10/2026 on ABC North and West SA...
ABC Northern Tasmania Two Feet & A Heartbeat Radio Clipping: Hannah and Alexis
Two Feet & A Heartbeat 2026 News Clipping: Originally posted 06/10/2026 on Breakfast ABC Northern Tasmania...
Fundraising walk for childhood heart disease arrives in Broome
Two Feet & A Heartbeat 2026 News Clipping: Originally posted 12/10/2026 in the South Western Times; Broome AdvertiserLink available here Author: Seth Carter Broome locals are being encouraged to put on their walking shoes this October as Heartkids’ annual Two Feet & a Heartbeat annual community walk arrives at Cable Beach. The fundraiser, in support […]...
Fundraising walk for childhood heart disease arrives in Bunbury
Two Feet & A Heartbeat 2026 News Clipping: Originally posted 12/10/2026 in the South Western Times; Bunbury HeraldLink available here Author: Seth Carter Locals are being encouraged to put on their walking shoes this October as Heartkids’ annual Two Feet & a Heartbeat annual community walk arrives at Jetty Baths in Bunbury. The fundraiser, in […]...
HeartKids walk returns to Moonta
Two Feet & A Heartbeat 2026 News Clipping: Originally posted 13/10/2026 in the Yorke Peninsula Country Times KadinaAuthor: Caitlin Menadue The third annual Two Feet and a Heartbeat walk for HeartKids returns to Moonta Bay this Sunday, October 18, raising funds and awareness for families affected by childhood-onset heart disease. Among those taking part will […]...
Kiama infant’s incredible recovery after shock heart condition discovery
Two Feet & A Heartbeat 2026 News Clipping: Originally posted 126/09/2026 on Region IllawarraLink available here A Kiama family will walk alongside their community in support of children impacted by heart disease and to share their own experience, just months after their baby girl underwent major surgery to save her life. If you didn’t know […]...
From emergency infant surgeries to netball: The Advocate, The Launceston Examiner
Two Feet & A Heartbeat 2026 News Clipping: Originally posted 08/10/2026 in the AdvocateAdditionally posted on 08/10/2026 in the Launceston ExaminerStory link hereStory by Freddie Moffat HANNAH Hughes knew very early in her daughter Alexis Groves’ life that something was not right. The Devonport girl was 14 days old when a midwife started to notice […]...
Two Feet & A Heartbeat – Australians invited to Walk for HeartKids this October
Two Feet & A Heartbeat 2026 News Clipping: Originally posted on Melbourne InsiderLink available here About this event Event details from Heartkids Australians are being encouraged to put on their walking shoes this October as HeartKids’ annual Two Feet & A Heartbeat walks bring thousands of heart kids, heart adults, families, friends and supporters together […]...
Walk for Heartkids this October
Two Feet & A Heartbeat 2026 News Clipping: Originally posted What’s On SydneyLink available here Walk for Heartkids this October Sunday 18th October, 2026 at 9am Information Australians are being encouraged to put on their walking shoes this October as HeartKids’ annual Two Feet & A Heartbeat walks bring thousands of heart kids, heart adults, […]...
Young heart surgery survivor to join Mackay HeartKids walk
Two Feet & A Heartbeat 2026 News Clipping: Originally posted 13/10/2026 on the Mackay MinuteLink available here What’s Happening? Camryn and her family will join the HeartKids community in Mackay this Saturday for the annual Two Feet & A Heartbeat charity walk. The event takes place at Old Mulherin Park on Saturday, 17 October 2026, […]...


