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Long QT Syndrome Facebook Group

Number of Members

1000+

Main Activities

Online chat/support

Conditions of Participation

This is a private Facebook support group for those who are suffering from or coping with long-QT syndrome, a rare heart condition.

About

You are not alone.

This is a support group for those who are suffering from or coping with long-QT syndrome, a rare heart condition. We share good quality information and our own stories. Feel free to ask questions, or vent. Please be nice to other members.

Self-generated fundraising posts not allowed. Non profit organizations related to LQTS and similar conditions are encouraged to contact admins

HeartKids is not affiliated with this support group or organisation. It is the responsibility of the individual and/or their carer(s) to determine whether this or any other organisation on this website may provide some benefit to them.

Last Reviewed: 25 August 2026

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