HeartKids Presents CHD Real Talk: Experiences of living with CHD


Introducing CHD Real Talk, an insightful new video series presented by HeartKids. Join us as we delve into the realities of living with Congenital Heart Disease (CHD) with individuals and families from our CHD community.

In this series, we aim to demystify the experiences of those living with CHD and shed light on the unique challenges people face, answering questions that delve into the heart of the matter.

Has having a heart condition had an impact on your identity? How do you navigate disclosing your heart condition? What is it like to be the sibling of a heart kid? How do you emotionally and practically prepare for surgery?

Living with CHD can be a complex journey. Despite its prevalence, there remains a limited understanding of the various challenges faced by individuals and families. That’s why this series is so important—to bridge the gap in understanding, provide a platform for CHD voices to be heard and talk openly about the value of support.

It’s changed my outlook on life to be more appreciative of every day…

Zai, Heart Teen and Real Talk participant

Our participants bravely provide an intimate glimpse into the ups, downs and everything in between of living with a heart condition. From young individuals navigating their personal journeys to the unwavering support of parents and siblings, each story offers a unique view.

CHD Real Talk offers guidance, encouragement, and a sense of unity for those who share similar experiences.

“You want to be able to be like everyone else, to strive and achieve and fulfil all your life dreams…” 

Debra, Heart Adult and Real Talk participant

We invite you to join us as we explore these important experiences and extend our deepest gratitude to the individuals and families who have generously shared their personal stories, making this series possible. We hope Real Talk helps to build understanding and empower individuals and families impacted by CHD.

This 10-part series is currently being released weekly via social media and here on our website.


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