What It’s Really Like to Have a Heart Kid in the Family, and to Cope with Grief
‘MALACHY’ the book is about the life of my HeartKid Malachy.
HeartKids Presents CHD Real Talk: Experiences of living with CHD
Introducing CHD Real Talk, an insightful new video series presented by HeartKids. Join us as we delve into the realities of living with Congenital Heart Disease (CHD) with individuals and families from our CHD community.
Navigating School and Life with CHD – Emma Psaros
Hello, I’m Emma, and I’m 24 years old. Here is my reflection on navigating school and life with congenital heart disease.
Balancing roles: being a nurse and parent of a child with CHD – Grace Larson
As a Paediatric Critical Care nurse, I have spent countless hours caring for children with congenital heart disease. I have sat with parents as they found out, following birth, that their child had a rare heart condition and required open heart surgery within days. I...
Elly’s Story
23-year-old, Elly Regan from near Rockhampton was diagnosed with congenital heart disease prenatally and has had four surgeries including two open-heart surgeries since she was born. Elly was diagnosed with a rare form of CHD called pentalogy of fallot.
