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Resources and Information

Resources and Information
These resources can help you learn more about childhood heart disease and assist you to make informed life and lifestyle choices.

General Resources

The facts (PDF)

This fact sheet provides an overview of the different types of childhood heart disease, looking at some key facts and statistics.

Download - The Facts 

Causes (PDF)

Most cases of congenital heart defects have no known cause. Some of the known causes include genetics and environmental factors related to maternal health.

Download - Causes 

For Parents and Carers

New diagnosis (PDF)

This fact sheet contains general information about CHD, how to manage a new diagnosis and information on how to access more support if you need it.

Download - New Diagnosis

How HeartKids can support you (PDF)

This brochure explains some of the support and services HeartKids provides to individuals and families in and out of hospital.

Download - How HeartKids can Support You 

Starting school (PDF)

This fact sheet provides information and tips to help you identify and meet any challenges when your child is starting school.


For Young People and Adults

Growing up with childhood heart disease (PDF)

This fact sheet outlines some of the developmental changes young people experience in adolescence and how to manage a heart condition during this time.


Alcohol (PDF)

This fact sheet outlines things to consider before drinking alcohol. If you have a heart condition, you should check with your health care team about what is safe for you.


Energy drinks (PDF)

This fact sheet outlines some things to consider about energy drinks. It is important to do your research and to speak to your health care team.


Exercise (PDF)

Almost everyone with CHD can benefit from exercise but it is important to speak to your doctor so that you can do it in a way that is safe and beneficial for you.


Immunisation (PDF)

Some young people with heart conditions may need to be extra vigilant about flu shots and other preventative vaccines that are not on the standard immunisation schedule.


Privacy (PDF)

The information in this fact sheet explains how and why you are entitled to confidential health care.


Travel (PDF)

Your heart condition should not be a barrier to seeing the world. Travelling with a health condition might mean you have some extra considerations and planning to do.


Travel insurance (PDF)

In many cases pre-existing conditions will not be covered by a standard travel insurance plan. When choosing a policy, it’s important to know its limits and exclusions.


Adulthood with childhood heart disease (PDF)

It is important to maintain ongoing care for your heart disease in adulthood. This fact sheet outlines some key considerations for adults.