Number of Members
50-1000
Main Activities
Online chat/support, In person group meet ups
Conditions of Participation
Private FB Group; Request to join required. Community for those with CHARGE syndrome, as well as parents, caregivers, or other family to receive support and resources.
About
The group was created in 2011 to connect families, from around Australia and New Zealand, who have an interest in CHARGE Syndrome. Now the group has grown to over 500 members, locally and from around the world. One big CHARGE family. They have some international medical and educational experts on board, who can sometimes answer questions. The purpose of the group is to provide a safe, understanding space, where families, carers, people with CHARGE Syndrome and also those with an interest in CHARGE, can share information and advice, learn from one another, celebrate together and support each other. There have been posts on all sorts of medical, educational, behavioural and communication topics.
