Childhood-onset Heart Disease (CoHD) Directory

This directory is a national, publicly accessible directory of qualified health care professionals and local and national peer groups to improve access to support, clinicians and other health professionals with specific Congenital and Childhood-onset Heart Disease (CoHD) skills.

The information in the CoHD Directory has been collated through desktop research and individual submissions from the health care professionals, CoHD related organisations, support networks, and the CoHD community. Each entry is validated by HeartKids before listed.

Every effort has been made to provide up to date and accurate information; this may not be a full representation of providers, organisations, or support groups available.

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Showing 10 group types

ACHD Facebook page

Peer Support Group (online & face to face meet ups)
Nationwide
Community Support

Carer Gateway – NSW groups

Peer Support Group (online & face to face meet ups)
NSW
Bereavement Community Support Mental Health Parent/Carer Support

CHARGE

Peer Support Group (online & face to face meet ups)
Nationwide
Community Support

Dads Groups

Peer Support Group (online & face to face meet ups)
Nationwide
Community Support Dads

Down Syndrome Queensland

Peer Support Group (online & face to face meet ups)
QLD
Community Support

Genetic Support Network Victoria

Peer Support Group (online & face to face meet ups)
VIC
Community Support Parent/Carer Support

MyTime

Peer Support Group (online & face to face meet ups)
Nationwide
Dads Mums Parent/Carer Support Parenting

Noonan Syndrome

Peer Support Group (online & face to face meet ups)
Nationwide
Community Support

Red Tree Foundation

Peer Support Group (online & face to face meet ups)
Nationwide
Bereavement

S.O.F.T Australia – Support Organisation for Trisomy in Australia

Peer Support Group (online & face to face meet ups)
Nationwide
Community Support
Can’t find what you’re looking for?

HeartKids Helpline

The HeartKids Helpline provides support, guidance, and information for anyone affected by childhood-onset heart disease. Call 1800 432 785.

You may also wish to contact us using the webchat service available on our website!

These methods of contact on the Helpline are all available during business hours (9am to 5pm, Monday to Friday AEDT/AEST).

You can contact us outside of these hours by filling in this form and we’ll get back to you the following business day

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