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S.O.F.T Australia – Support Organisation for Trisomy in Australia

Summary of Support

Support organisation for families with children with Trisomy diagnoses; a place of advocacy, resources, and support.

About Organisation

If you find yourself in the world known as Trisomy then we are here to help.  SOFT Australia started in November1996, in a small house in Kirrawee NSW.  We are a small community of families supporting each other through the difficult journey of having a child living with, and potentially dying because of a Trisomy condition.

We have biannual family conferences.  A time to get together have some laughs, educate ourselves and others, while meeting new people.  We also try to incorporate some time for reflection on those we have lost and celebration of those still with us.

HeartKids is not affiliated with this support group or organisation. It is the responsibility of the individual and/or their carer(s) to determine whether this or any other organisation on this website may provide some benefit to them.

Last Reviewed: 25 August 2026

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