Childhood-onset Heart Disease (CoHD) Directory

This directory is a national, publicly accessible directory of qualified health care professionals and local and national peer groups to improve access to support, clinicians and other health professionals with specific Congenital and Childhood-onset Heart Disease (CoHD) skills.

The information in the CoHD Directory has been collated through desktop research and individual submissions from the health care professionals, CoHD related organisations, support networks, and the CoHD community. Each entry is validated by HeartKids before listed.

Every effort has been made to provide up to date and accurate information; this may not be a full representation of providers, organisations, or support groups available.

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Showing 143 group types

13 HEALTH – Qld

Phone Outreach/Counselling Services
Queensland
Community Support Dads Mums Parenting

13 YARN

Phone Outreach/Counselling Services
Nationwide
Aboriginal and/or Torres Strait Islander Community Support

Ability Agriculture Facebook Page

Peer Support Group (online)
Nationwide
Community Support

ACHD Facebook page

Peer Support Group (online & face to face meet ups)
Nationwide
Community Support

Alcapa Support Facebook Page

Peer Support Group (online)
Nationwide
Community Support

Amber NT

Advocacy, Resources, and Other Support
TIWI, NT
Bereavement

ARCAN (Australian Rare Chromo Awareness Network)

Peer Support Group (online)
Nationwide
Community Support

Atfaal Family Playgroup

Peer Support Group (face to face meet ups)
Gungahlin, ACT
Community Support Playgroups

Baby Give Back – Queensland

Community Outreach (Including Mutual Aid and Crisis Support)
Queensland
Community Support

Bear Cottage, NSW

Accommodation Support
Manly, NSW
Bereavement Dads Grandparents Mums Parent/Carer Support Siblings Teens
Can’t find what you’re looking for?

HeartKids Helpline

The HeartKids Helpline provides support, guidance, and information for anyone affected by childhood-onset heart disease. Call 1800 432 785.

You may also wish to contact us using the webchat service available on our website!

These methods of contact on the Helpline are all available during business hours (9am to 5pm, Monday to Friday AEDT/AEST).

You can contact us outside of these hours by filling in this form and we’ll get back to you the following business day

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