Summary of Support
We provide information about Costello syndrome and support to parents and health providers around the world. Most importantly we provide a global support. We’re a parent to parent support group that provides information and support about Costello syndrome to parents and health providers around the world.
Our aim is to gain a to better understanding of Costello syndrome identify the best practices in treatment for our children. But most of all we provide a support network through which families can share there own experiences and support each other through a mutual understanding. Whatever you learn from this site…”don’t stop asking questions!” The answers may surprise you.
About Organisation
We’re a parent to parent support group that provides information and support about Costello syndrome to parents and health providers around the world.
