Childhood-onset Heart Disease (CoHD) Directory

This directory is a national, publicly accessible directory of qualified health care professionals and local and national peer groups to improve access to support, clinicians and other health professionals with specific Congenital and Childhood-onset Heart Disease (CoHD) skills.

The information in the CoHD Directory has been collated through desktop research and individual submissions from the health care professionals, CoHD related organisations, support networks, and the CoHD community. Each entry is validated by HeartKids before listed.

Every effort has been made to provide up to date and accurate information; this may not be a full representation of providers, organisations, or support groups available.

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Showing 11 group types

Ability Agriculture Facebook Page

Peer Support Group (online)
Nationwide
Community Support

Alcapa Support Facebook Page

Peer Support Group (online)
Nationwide
Community Support

ARCAN (Australian Rare Chromo Awareness Network)

Peer Support Group (online)
Nationwide
Community Support

Bears of Hope – Nationwide

Peer Support Group (online)
Nationwide
Bereavement
Community Support Parent/Carer Support

Living with Adult Congenital Heart Disease Facebook Page

Peer Support Group (online)
Nationwide
Community Support

Mums & Dads of High Care Babies/Children Australia

Peer Support Group (online)
Nationwide
Community Support Parent/Carer Support Parenting

Mums Around Australia

Peer Support Group (online)
Nationwide
Mums Parent/Carer Support Parenting

Reach Out

Peer Support Group (online)
Nationwide
Mental Health Teens

Siblings Australia (sib chat)

Peer Support Group (online)
Nationwide
Community Support Siblings Teens
Can’t find what you’re looking for?

HeartKids Helpline

The HeartKids Helpline provides support, guidance, and information for anyone affected by childhood-onset heart disease. Call 1800 432 785.

You may also wish to contact us using the webchat service available on our website!

These methods of contact on the Helpline are all available during business hours (9am to 5pm, Monday to Friday AEDT/AEST).

You can contact us outside of these hours by filling in this form and we’ll get back to you the following business day

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