Childhood-onset Heart Disease (CoHD) Directory

This directory is a national, publicly accessible directory of qualified health care professionals and local and national peer groups to improve access to support, clinicians and other health professionals with specific Congenital and Childhood-onset Heart Disease (CoHD) skills.

The information in the CoHD Directory has been collated through desktop research and individual submissions from the health care professionals, CoHD related organisations, support networks, and the CoHD community. Each entry is validated by HeartKids before listed.

Every effort has been made to provide up to date and accurate information; this may not be a full representation of providers, organisations, or support groups available.

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Showing 14 group types

Hypertropic Cardiomyopathy (HCM) HCMA

Peer Support Group (online)
International
Adults with CHD Community Support Parent/Carer Support

Interstate Patient Travel Assistance Scheme (IPTAS) ACT

Community Outreach (Including Mutual Aid and Crisis Support)
ACT
Adults with CHD Parent/Carer Support

Isolated Patient Travel and Accommodation Assistance Scheme (IPTAAS) NSW

Community Outreach (Including Mutual Aid and Crisis Support)
NSW
Adults with CHD Parent/Carer Support

PalAssist

Phone Outreach/Counselling Services
Nationwide
Adults with CHD Bereavement Grandparents Mental Health Parent/Carer Support Siblings

Patient Assistance Transport Scheme (PATS) SA

Community Outreach (Including Mutual Aid and Crisis Support)
SA
Adults with CHD Parent/Carer Support

Patient Assistance Travel Scheme (PATS) NT

Community Outreach (Including Mutual Aid and Crisis Support)
NT
Adults with CHD Parent/Carer Support

Patient Assisted Travel Scheme (PATS) WA

Community Outreach (Including Mutual Aid and Crisis Support)
WA
Adults with CHD Parent/Carer Support

Rare Voices Australia

Advocacy, Resources, and Other Support
Nationwide
Adults with CHD Dads Grandparents Mums Parent/Carer Support Teens

Rheumatic Heart Disease Australia

Advocacy, Resources, and Other Support
Nationwide
Aboriginal and/or Torres Strait Islander Community Support Adults with CHD Community Support

The Patient Travel Subsidy Scheme (PTSS) QLD

Community Outreach (Including Mutual Aid and Crisis Support)
QLD
Adults with CHD Parent/Carer Support
Can’t find what you’re looking for?

HeartKids Helpline

The HeartKids Helpline provides support, guidance, and information for anyone affected by childhood-onset heart disease. Call 1800 432 785.

You may also wish to contact us using the webchat service available on our website!

These methods of contact on the Helpline are all available during business hours (9am to 5pm, Monday to Friday AEDT/AEST).

You can contact us outside of these hours by filling in this form and we’ll get back to you the following business day

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