Summary of Support
RVA is committed to advocating in ways we believe are likely to be the most effective and in a manner that is solutions-focused, respectful and continues to build and protect RVA’s ongoing relationships with all stakeholders: policy-makers, Governments, Departments of Health, clinicians, practitioners, researchers, academics, industry as well as people living with a rare disease, and their family and carers.
About Organisation
Rare Voices Australia (RVA) is the national peak body for Australians living with a rare disease. RVA provides a strong, unified voice to advocate for policy as well as health, disability and other systems that work for people living with a rare disease.
Our person-centred focus sees us working with all key stakeholders, including people living with a rare disease, governments, key peak bodies, researchers, clinicians and industry. We advocate for the best outcomes for Australians living with a rare disease.
