Congenital Heart Disease
Congenital heart disease incorporates a group of abnormalities of the heart and is a general name for any type of malformation of the heart, heart valves or major blood vessels which are present at birth. Defects can range from simple to complex and can occur alone or in groups, depending on how the heart has developed.
Congenital heart disease can include the following abnormalities:
- Atrial Septal Defect (ASD)
- Ventricular Septal Defect (VSD)
- Persistent Ductus Arteriosus
- Coarctation of the Aorta
- Aortic Valve Disease
- Pulmonary Valve Disease
- Mitral Valve Disease
- Atrio-ventricular septal defect (AVSD)
- Tetralogy of Fallot
- Transposition of the Great Arteries
- Pulmonary Atresia
- Single Ventricle pathology
- Cyanotic Congenital Disease
Congenital heart disease is the most common congenital disorder in
newborns. The birth rate prevalence of congenital heart disease is
understood to be approximately 8 – 10 cases per 1,000 live births. In
Australia, there are approximately 300,000 registered births per year
resulting 2,400 – 3,000 babies born each year with a form of congenital
heart disease. Cumulatively, taking into consideration newborns through
to adults living with congenital heart disease, this number could
conceivably represent well over 65,000 Australians.
Although there is no indication that the incidence of congenital
heart disease is increasing, as Australian birth rates increase and
enhanced medical care and technology continue to improve survival rates
following medical interventions, the prevalence is predicted to
increase. In particular, there are an increasing number of adults with
congenital heart disease who are not well served by the existing health
Gaining a better understanding of the entire spectrum of congenital
heart disease, the number of people living with congenital heart
disease, and the total burden of disease across the disease continuum is
imperative to patients and those responsible for treating them,
including health policy makers, ultimately delivering not just better,
but sustainable care.
HeartKids provides support and information for children, teens
and adults with congenital/childhood heart disease as well as those
that have acquired a heart condition during childhood. We also advocate for their needs and fund life-saving research.
CLICK HERE (PDF 487.1KB) to download the "When Your Baby is First Diagnosed" Fact Sheet.
CLICK HERE (PDF 551.2KB) to download the "Congenital Heart Disease" Fact Sheet.