Home > HeatKids Support Booklet

Learn about the support, resources and information HeartKids provide in hospital and in community. 

HeartKids support staff can help you navigate your journey as you care for your child, and connect with you critical support resources. 

You can contact our helpline on 1800 432 785 for tailored, empathetic advice.

About HeartKids

HeartKids is Australia’s only national organisation dedicated to supporting children, young
people and families impacted by childhood-onset heart disease (CoHD), including congenital and acquired heart conditions.

Receiving a diagnosis can feel overwhelming, especially if you are a new or expecting parent. You may find yourself navigating unfamiliar medical language, hospital stays, procedures
and uncertainty about what comes next which can be difficult.

HeartKids provides practical and emotional support, trusted information, and opportunities to connect with others who understand the experience.

Our support staff visit hospitals across Australia, offering in-person support through hospital admissions, during appointments, and alongside other significant moments in a family’s journey.

Many members of the team also bring lived experience, helping families to be informed, connected and supported through their child’s heart condition journey.

Our Support

In hospital

When you and your loved ones need to go to hospital in an emergency or for treatments, our
HeartKids Support Coordinators provide practical, emotional, and informational support to assist in meeting your immediate needs while you navigate your new circumstances.

We want you to be supported and well- informed throughout your healthcare journey.

In community

Our team is here to support you after you leave hospital too.
We can help with everyday challenges, answer questions and connect you with helpful services, such as:

Personalised check-ins and support from a HeartKids Support Coordinator
Access to the HeartKids Helpline
Mental health support
Tailored resources and information
Referrals to services and supports

HeartKids Helpline

The HeartKids Helpline provides free, confidential and empathetic support, advice and information
for anyone impacted by childhood-onset heart disease.

Available Monday to Friday, 9am–5pm AEST/AEDT, families, carers, and young people can connect with the team by
phone or livechat via the HeartKids website.
Call the HeartKids Helpline on 1800 432 785

Resource Library
The HeartKids resource library offers factsheets, podcast episodes, guides, videos and animations to help you better understand childhood-onset heart disease (CoHD) and its impacts.

With resources tailored to support you and your family at every stage, it’s a growing hub for anyone seeking trusted information and guidance on CoHD.

How HeartKids Can Help

The HeartKids support team can offer both emotional and practical support, including referrals to mental health and wellbeing services.

HeartKids Helpline

Available 9am–5pm AEST, Mon–Fri

Call: 1800 432 785
Webchat: heartkids.org.au

Mental Health Counselling Service

HeartKids offers a confidential mental health counselling service – call the HeartKids Helpline on 1800 432 785 to obtain a referral.

Follow us on social media

@HeartKidsAustralia
@HeartKids