Childhood Heart Disease (CHD)
Support available to you
HeartKids is the only organisation in Australia dedicated to supporting families impacted by CHD.
No matter where you are located, or how far you are into your CHD journey, HeartKids is here to support you.
We are here to help
HeartKids provides support for people and families impacted by congenital or childhood acquired heart disease. Many people find out that their child has a heart condition during pregnancy or at birth. This can be a very stressful and confusing period. HeartKids understands.
HeartKids can provide:
- Face to face or phone support
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Access to information, education, and resources
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Practical advice based on experience
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Connection to the HeartKids community
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Practical assistance, including
travel, accommodation and guidance on government and non-government financial support -
Emergency Care Packages, Care Bags, and Heart Beads program
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Teen transition, youth, and adult support programs.
No matter where you are, or how far you are into your CHD journey, HeartKids is here for you.
We spent 7 months in hospital, HeartKids provided my family with incredible support.
We really appreciate everything they did to make our lives just that little bit easier
Julia.
– Mum to William
HeartKids Helpline 1800 432 785
What is CHD?
Congenital heart disease, or heart disease that develops in childhood, referred to as “CHD”, incorporates a group of abnormalities of the heart and is a general name for any type of malformation of the heart, heart valves or major blood vessels which are present at birth.
Defects can range from simple to complex and can occur alone or in groups, depending on how the heart has developed.
How can HeartKids support you?
HeartKids is the only national not-for-profit organisation solely focused on supporting and advocating for all people impacted by CHD. Our purpose is to help you and your family lead the most fulfilling life possible and ensure that you do not feel alone in your journey.
Our support is a lifelong commitment as we know people with CHD and their families face unique, lifelong challenges. Whether you are a heart parent, a young person or adult with CHD, or a bereaved parent, HeartKids are here to support you.
HeartKids understands your challenges and will be with you wherever you are in your heart journey.
With nationwide networks, HeartKids can assist you wherever you are.