Establishing the Queensland Paediatric Cardiac Service CHD LIFE program database

Principle Investigator: Associate Professor Robert Justo

Project Institution: Lady Cilento Children’s Hospital, Brisbane

Children with Congenital Heart Disease (CHD) are surviving into adulthood with little known about their development over time. Each year over 100 Queensland children undergo open heart surgery before 12 months of age, placing them at risk of poorer developmental outcomes. The CHD LIFE (Long term Improvement in Functional hEalth) Program provides targeted developmental services, and developed a state-wide model of care to meet the developmental needs of these children. The project will establish a centralised database to support long-term follow up and research activity, measure state-wide model success, and inform local and international registries.

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