New CHD Directory

New CHD Directory

The CHD Directory is live!   As part of the Commonwealth funded work on the National Strategic Action Plan for Childhood Heart Disease (CHD), HeartKids has developed a national, publicly accessible CHD Directory to improve our community’s access to...
Elly’s Story

Elly’s Story

23-year-old, Elly Regan from near Rockhampton was diagnosed with congenital heart disease prenatally and has had four surgeries including two open-heart surgeries since she was born. Elly was diagnosed with a rare form of CHD called pentalogy of fallot.

Jaden’s Story

Jaden’s Story

My Daughter, Jaden, was born in 1995 by emergency C section at 42 weeks. Throughout my entire pregnancy and until Jaden was 6 days old, there had been no indication that there was anything wrong. Day 6 saw myself and Jaden on a Commercial flight being tra

Jessica’s Story

Jessica’s Story

Within minutes of being born, doctors discovered something wasn’t right. Jessica was quickly flown to Brisbane to be cared for. Jessica spent the first few months of her life in hospital because of her heart condition. Jessica would have 5 heart surgeries

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